Today is a belly bloat day, I'm talking, a no-pants wearing, gonna let it all hang out and wear my GTL jammies kind of day. Welcome to the life of a Crohnsie; or, sometimes, just an over-eaten hazy I-stuffed-myself day for some of you:)
After my over-eager self decided to conquer the world, cooking, groceries and walking Russell yesterday, my hips are paying the price. I've spent the majority of the day curled up with my beloved heating pad, some Tylenol and a nice little night cap bath to ease up the joints. Long term Prednisone use can lead to hip complications like Avascular Necrosis or Osteonecrosis which can sometimes mean hip replacements before the ripe old age of maybe 50... so let's hope I may have just trucked it too hard going down Joseph Howe Drive and no further complications will arise!
I've continued my consistent hunger monster and have been indulging in grapes, bread, yogurt, ADL Cheese (which I excitedly buy in Halifax for 'special' occasions, excitedly claiming to Bobby that I've bought a surprise) and the odd Lindt bunny that's still laying around as a product of after-Easter specials. Each night to keep myself feeling sane I carefully plan out a neat little snack regiment, usually a bath, some homework and a good show. This keeps me occupied while Bobby works evenings and gives me something to focus on when I often feel too tired to do much else.
I've been having serious cramping today, probably why I feel like I've got a 20 lb mass for a stomach. My 'healthy' prednisoned bowels are failing a bit today and I've had to make some serious mad dashes that have left me a little worse for wear and a little more tired than I'd expected. I try to nap during the day when I feel this way, but the Prednisone leaves me feeling a little bit like a menopausal mess, with lots of sweats while sleeping and I'm pretty sure Bobby is about to biff our classic 1995 fan out of our bedroom window if I don't stop freezing him out during the night. Russell takes advantage of it and curls right in to mom, further causing the discomfort, as he throws off some serious heat himself. We might need to invest in a king sized bed soon!
I've said it before, but I feel like I need to say it again... I am so so so so so overwhelmed by the amount of love, support and gratitude I have received from all of you... Hearing that I am an inspiration and brave is probably the kindest compliment anyone has ever given me, and I feel so lucky to share this journey with all of you... but the truth is is that I don't just write this blog for myself; yes I recognize that it is therapeutic and it creates awareness; but my ultimate truth is that YOU all inspire me. You give me your time to hear my story, listen to what I have to say and educate yourself on a disease that many people don't know about. Crohn's is one of the leading illnesses for young adults and many are diagnosed at a young age; it is important for us to know what the signs are in hopes that maybe you, your family member, a friend, or your OWN kids will be able to recognize the symptoms, have successful treatment, and hopefully one day find a cure. Bravo to you all for opening your mind, your heart and reserving judgement on an issue that is rarely discussed. I feel blessed to be able to make some sort of impact on YOUR life.
In an attempt to hopefully raise more funds for Crohn's research, I also encourage you all to book an upcoming date in your calendars... With the Spring weather coming, there is no better time to schedule a Saturday to indulge in delicious hot dogs for a good cause. On May 11th, M&M Meatshops will be hosting it's annual charity day BBQ where all proceeds and donations will be given to The Crohn's and Colitis Foundation of Canada. All you have to do is show up, and eat:) I myself will still be on Prednisone and am positive I can probably put at least 2 down :)
To find out more check out their website: http://www.charitybbqday.ca/home.asp
After my over-eager self decided to conquer the world, cooking, groceries and walking Russell yesterday, my hips are paying the price. I've spent the majority of the day curled up with my beloved heating pad, some Tylenol and a nice little night cap bath to ease up the joints. Long term Prednisone use can lead to hip complications like Avascular Necrosis or Osteonecrosis which can sometimes mean hip replacements before the ripe old age of maybe 50... so let's hope I may have just trucked it too hard going down Joseph Howe Drive and no further complications will arise!
I've continued my consistent hunger monster and have been indulging in grapes, bread, yogurt, ADL Cheese (which I excitedly buy in Halifax for 'special' occasions, excitedly claiming to Bobby that I've bought a surprise) and the odd Lindt bunny that's still laying around as a product of after-Easter specials. Each night to keep myself feeling sane I carefully plan out a neat little snack regiment, usually a bath, some homework and a good show. This keeps me occupied while Bobby works evenings and gives me something to focus on when I often feel too tired to do much else.
I've been having serious cramping today, probably why I feel like I've got a 20 lb mass for a stomach. My 'healthy' prednisoned bowels are failing a bit today and I've had to make some serious mad dashes that have left me a little worse for wear and a little more tired than I'd expected. I try to nap during the day when I feel this way, but the Prednisone leaves me feeling a little bit like a menopausal mess, with lots of sweats while sleeping and I'm pretty sure Bobby is about to biff our classic 1995 fan out of our bedroom window if I don't stop freezing him out during the night. Russell takes advantage of it and curls right in to mom, further causing the discomfort, as he throws off some serious heat himself. We might need to invest in a king sized bed soon!
I've said it before, but I feel like I need to say it again... I am so so so so so overwhelmed by the amount of love, support and gratitude I have received from all of you... Hearing that I am an inspiration and brave is probably the kindest compliment anyone has ever given me, and I feel so lucky to share this journey with all of you... but the truth is is that I don't just write this blog for myself; yes I recognize that it is therapeutic and it creates awareness; but my ultimate truth is that YOU all inspire me. You give me your time to hear my story, listen to what I have to say and educate yourself on a disease that many people don't know about. Crohn's is one of the leading illnesses for young adults and many are diagnosed at a young age; it is important for us to know what the signs are in hopes that maybe you, your family member, a friend, or your OWN kids will be able to recognize the symptoms, have successful treatment, and hopefully one day find a cure. Bravo to you all for opening your mind, your heart and reserving judgement on an issue that is rarely discussed. I feel blessed to be able to make some sort of impact on YOUR life.
In an attempt to hopefully raise more funds for Crohn's research, I also encourage you all to book an upcoming date in your calendars... With the Spring weather coming, there is no better time to schedule a Saturday to indulge in delicious hot dogs for a good cause. On May 11th, M&M Meatshops will be hosting it's annual charity day BBQ where all proceeds and donations will be given to The Crohn's and Colitis Foundation of Canada. All you have to do is show up, and eat:) I myself will still be on Prednisone and am positive I can probably put at least 2 down :)
To find out more check out their website: http://www.charitybbqday.ca/home.asp
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